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The National Institute of Neurological Disorders and Stroke is seeking comment on a 5-10 year plan for advancing epilepsy research.
The framework, 2014 Benchmarks for Epilepsy Research, came out of a 2-day meeting called Curing the Epilepsies 2013: Pathways Forward, which was held in April at the NINDS. The meeting was convened to discuss advances in the field since 2007, when the previous research agenda was established.
The draft framework for 2014 includes goals in four major areas:
• Understanding the causes of epilepsies and epilepsy-related conditions.
• Preventing epilepsy and its progression.
• Improving treatment options for controlling seizures and epilepsy-related conditions without side effects.
• Limiting or preventing adverse consequences of seizures and their treatment across the lifespan.
At the April meeting, researchers spoke of specific challenges in epilepsy research, prevention, and treatment. Vast amounts of data are being generated, requiring technologies to sort it all into useful information. Genomics is a growing field, with its own set of challenges. Technology is playing a role in creating new diagnostic capabilities and new avenues for research. There is a need for models that more closely reflect the etiology and clinical features of human disease. And translational studies are urgently required to bring basic science into the clinical realm.
"Embracing a culture of data sharing, collaboration, and integration across scales and approaches may best enable the epilepsy community to capitalize on these resources," according to the draft.
The draft also recognizes that much progress may come from areas that aren’t highlighted in the agenda. The NINDS is suggesting that researchers and clinicians in the epilepsy field also incorporate recommendations from a 2012 report from the Institute of Medicine, "Epilepsy Across the Spectrum: Promoting Health and Understanding." That report set priorities that focused on the public health aspects of the epilepsies, including population research, quality of care issues, and patient and clinician education.
The NINDS is accepting comments on the draft through Nov. 4. They can be submitted electronically at the institute’s website. The comments will be considered in the development of the final version of the research and benchmarking agenda.
On Twitter @aliciaault
The National Institute of Neurological Disorders and Stroke is seeking comment on a 5-10 year plan for advancing epilepsy research.
The framework, 2014 Benchmarks for Epilepsy Research, came out of a 2-day meeting called Curing the Epilepsies 2013: Pathways Forward, which was held in April at the NINDS. The meeting was convened to discuss advances in the field since 2007, when the previous research agenda was established.
The draft framework for 2014 includes goals in four major areas:
• Understanding the causes of epilepsies and epilepsy-related conditions.
• Preventing epilepsy and its progression.
• Improving treatment options for controlling seizures and epilepsy-related conditions without side effects.
• Limiting or preventing adverse consequences of seizures and their treatment across the lifespan.
At the April meeting, researchers spoke of specific challenges in epilepsy research, prevention, and treatment. Vast amounts of data are being generated, requiring technologies to sort it all into useful information. Genomics is a growing field, with its own set of challenges. Technology is playing a role in creating new diagnostic capabilities and new avenues for research. There is a need for models that more closely reflect the etiology and clinical features of human disease. And translational studies are urgently required to bring basic science into the clinical realm.
"Embracing a culture of data sharing, collaboration, and integration across scales and approaches may best enable the epilepsy community to capitalize on these resources," according to the draft.
The draft also recognizes that much progress may come from areas that aren’t highlighted in the agenda. The NINDS is suggesting that researchers and clinicians in the epilepsy field also incorporate recommendations from a 2012 report from the Institute of Medicine, "Epilepsy Across the Spectrum: Promoting Health and Understanding." That report set priorities that focused on the public health aspects of the epilepsies, including population research, quality of care issues, and patient and clinician education.
The NINDS is accepting comments on the draft through Nov. 4. They can be submitted electronically at the institute’s website. The comments will be considered in the development of the final version of the research and benchmarking agenda.
On Twitter @aliciaault
The National Institute of Neurological Disorders and Stroke is seeking comment on a 5-10 year plan for advancing epilepsy research.
The framework, 2014 Benchmarks for Epilepsy Research, came out of a 2-day meeting called Curing the Epilepsies 2013: Pathways Forward, which was held in April at the NINDS. The meeting was convened to discuss advances in the field since 2007, when the previous research agenda was established.
The draft framework for 2014 includes goals in four major areas:
• Understanding the causes of epilepsies and epilepsy-related conditions.
• Preventing epilepsy and its progression.
• Improving treatment options for controlling seizures and epilepsy-related conditions without side effects.
• Limiting or preventing adverse consequences of seizures and their treatment across the lifespan.
At the April meeting, researchers spoke of specific challenges in epilepsy research, prevention, and treatment. Vast amounts of data are being generated, requiring technologies to sort it all into useful information. Genomics is a growing field, with its own set of challenges. Technology is playing a role in creating new diagnostic capabilities and new avenues for research. There is a need for models that more closely reflect the etiology and clinical features of human disease. And translational studies are urgently required to bring basic science into the clinical realm.
"Embracing a culture of data sharing, collaboration, and integration across scales and approaches may best enable the epilepsy community to capitalize on these resources," according to the draft.
The draft also recognizes that much progress may come from areas that aren’t highlighted in the agenda. The NINDS is suggesting that researchers and clinicians in the epilepsy field also incorporate recommendations from a 2012 report from the Institute of Medicine, "Epilepsy Across the Spectrum: Promoting Health and Understanding." That report set priorities that focused on the public health aspects of the epilepsies, including population research, quality of care issues, and patient and clinician education.
The NINDS is accepting comments on the draft through Nov. 4. They can be submitted electronically at the institute’s website. The comments will be considered in the development of the final version of the research and benchmarking agenda.
On Twitter @aliciaault